• Making It Better

    We set up our Charity, Making It Better – The Daniel Courtney Trust, in June 2005 in memory of our son Daniel, who suffered from Microvillous Atrophy – an extremely rare genetic disorder of the bowel. Microvillous Atrophy is a devastating condition which is little known and little understood. The gene responsible for MVA (MYO5B) was isolated as recently as August 2008, and as a Charity we are now concentrating our efforts on funding research into finding a cure for this rare condition. To date we have raised over £35,000 thanks to the generosity of our supporters. Our son Daniel was a huge inspiration to everyone who met him. He…