What if your child was one in a million ..? for the wrong reason?
The Daniel Courtney Trust ... Making It Better
MVA
MVA is an extremely rare genetic intestinal disorder, in which the bowel is unable to absorb any nutrients from food. It is a catastrophic condition, which is both difficult to diagnose and complicated to manage.
About Us
We set up our Charity, Making It Better - The Daniel Courtney Trust, in June 2005 in memory of our son Daniel, who suffered from Microvillous Atrophy (MVA) - an extremely rare genetic disorder of the bowel.
How can You Help
OK, we realise it's not easy coming up with ideas. But, if you do have an idea so brilliant that it just has to be made reality, please contact us and we'll see if we can put it into practice. Even the smallest germ of an idea can be brought to fruition.
The Daniel Courtney Trust
We are a very small charity, but we've achieved a lot
Thanks to the generosity of our supporters, this is what we’ve achieved so far:
Raised (in total) to date
£
Donation from Jeans For Genes
£
Total donated so far
£
Major Projects Funded
Our Christmas Cards for 202
our 2024 christmas cards will be here soon
Santa’s getting busy and the elves are setting everything up for the big day. It’s that time of year again when people’s thoughts turn to Egg Nog! Let’s face it, when else do you think of Egg Nog? And of course everyone starts thinking about The Daniel Courtney Trust Christmas Cards.
It’s a tradition! Why not spoil your loved ones? Watch this space to get yours ordered and we’ll get them to you in plenty of time to send to your friends and family.
What are we up to?
See our latest blog posts here
There’s always something happening at The Daniel Courtney Trust. New fundraisers, new donations and new ‘news’. We’ll put our latest and most interesting stuff on our blog.
See the most up to date here
Get In Touch
What makes things better is connection
We’d love to hear from you. Human beings are social animals and we’ve love to connect. If you have an idea for a fundraiser or would like to help in another way; if you have a recent diagnosis and would like to know more or simply need a shoulder…
Get in touch and let’s chat.
The Daniel Courtney Trust
Meet some of our Trustees
"You'll never find a rainbow if you're always looking down"
Jo Courtney
Trustee
"if you want to build a ship, don't drum up the men to gather wood, divide the work and give orders. Instead, teach them to yearn for the vast and endless sea"
Mark Courtney
Trustee
"May your home always be too small to hold all your friends!"
Gerry Farrell-Morrish
Trustee