MVA is an extremely rare genetic intestinal disorder, in which the bowel is unable to absorb any nutrients from food. It is a catastrophic condition, which is both difficult to diagnose and complicated to manage.
We set up our Charity, Making It Better - The Daniel Courtney Trust, in June 2005 in memory of our son Daniel, who suffered from Microvillous Atrophy (MVA) - an extremely rare genetic disorder of the bowel.
How can You Help
OK, we realise it's not easy coming up with ideas. But, if you do have an idea so brilliant that it can't be cooped up any longer, please contact us and we'll see if we can put it into practice. Even the smallest germ of an idea can be brought to fruition, so don't be sh
The Daniel Courtney Trust
We are a very small charity, but we've achieved a lot
Thanks to the generosity of our supporters, this is what we’ve achieved so far
Raised (in total) to date
Donation from Jeans For Genes
Total donated so far
Major Projects Funded
Our Christmas Cards for 2023
Buy now before they're all gone!
Santa’s getting busy and the elves are setting everything up for the big day. It’s that time of year again when people’s thoughts turn to Egg Nog! Let’s face it, when else do you think of Egg Nog? And of course everyone starts thinking about The Daniel Courtney Trust Christmas Cards.
It’s a tradition! Why not spoil your loved ones? Order now and we’ll get them to you in plenty of time to send to your friends and family.
We’d love to hear from you. Human beings are social animals and we’ve love to connect. If you have an idea for a fundraiser or would like to help in another way; if you have a recent diagnosis and would like to know more or simply need a shoulder…