• MVA

    Microvillous Atrophy (MVA) (sometimes also know as Microvillous Inclusion Disease) is an extremely rare genetic intestinal disorder, in which the bowel is unable to absorb any nutrients from food.  It is a catastrophic condition, which is both difficult to diagnose and complicated to manage.  Patients with MVA are unable to eat normally and are therefore totally dependent on being fed intravenously with TPN (Total Parenteral Nutrition). However, over time the use of TPN can cause damage to the liver, and the central line (known as a Hickman Line) through which the TPN is administered is prone to infection, often leading to sepsis. Consequently, the long-term outlook for children being treated…