• The Daniel Courtney TrustThe Daniel Courtney Trust - Researching into Microvilluous Atrophy
  • Bike RideWhy not raise money for us - Just Text Giving: DANI31 to 70070
  • Golf DayAnother Successful Golf Day in 2014
  • toughMudderOh, it's Tough!... Get muddy for us! - Just Text Giving: DANI31 to 70070
The Daniel Courtney Trust1 Bike Ride2 Golf Day3 toughMudder4

I feel privileged to have been Daniel's Mum. He was an absolutely wonderful little boy and incredibly special to me. I am so proud and humbled by the way he remained so cheerful despite everything he went through - he was truly inspirational! He had the most amazing ability to cheer up everyone's day with his beaming smile and charming personality.

This Charity is our way of paying tribute to Daniel and keeping his memory alive. We are determined to raise enough money to fund research into isolating the gene responsible for Microvillous Atrophy, with the ultimate goal of finding a cure for this devastating condition.



Jo Courtney


We also hope that Daniel's story will encourage people to sign up to the organ donor register and discuss their wishes with their family. On behalf of everyone who knew and loved Daniel, I would like to pay tribute to Daniel's organ donors and their courageous and generous families. Organ donation is the ultimate gift. I would also like to thank everyone at Great Ormond Street Hospital and Birmingham Children's Hospital who cared for Daniel, and everyone at Edward House who looked after us as a family. We will always be grateful.

Jo - December 05


Return to Trustees Page




Daniel CourtneyDaniel was lucky to have received two transplants in his short lifetime. As Daniel's family we will always be grateful to two very special families who gave Daniel such an incredible gift. Raising awareness of the need for more people to sign the Organ Donor Register is very important to us.

Thank you for your interest in our Charity - we hope you will find this website informative. If you would like to support us, please click on the links under How to Help, or make a donation.